We are just a few days from Henley officially turning 4 months old. She fills our days with lots of smiles and is just on the cusp of full out laughter. For being such a tiny person, not even 10 lbs yet, she has the biggest personality we've ever seen in such a little package.
Last week her red blood cells continued to trend down. Unlike other checks that seem to go up and down, we have now had four tests that have all showed numbers going down. All that said, she is still in a safe zone and doesn't need another transfusion as of yet.
Her neutrophils have been nicely elevated with the help of two shots of neupogen each week. My practice poking horses and cows has served me well, so it's really a piece of cake to draw up a little medicine and give Henley a quick poke. She's such a tough girl that she hasn't even cried the last two times! Neupogen has been a huge blessing to us, elevating her neutrophils to a safe level so she is not quite as susceptible to infections. All that said, God really watched out for her prior to diagnosis because I was trotting around outside, through the barn, handling horses and letting them nuzzle her and toting her around the countryside without a single thought. All things that exposed her to bacteria and germs that could have been deadly with a neutrophil count of zero!
Tomorrow the community of New England is hosting a benefit for Henley. Due to weather concerns the meal and silent auction have been moved indoors. The outpouring of support that we have experienced is overwhelming. Henley is truly loved by so many people - young and old, near and far. We are forever blessed and can't thank you all enough. We have been especially touched by the young people of New England, elementary school kids hosting a bake sale for Henley and a story from a father who witnessed his young son praying before bed. When the Dad asked him if he was saying his bedtime prayers, the son answered that he was saying his prayers for Henley Johnson.
