I prepared a pretty lengthy post to go on the blog about our last 72 hours of travel (1404 miles total) and doctor visits but have decided not to post it at the moment. Maybe it was just therapeutic for me to write it and that all it was meant to be.
Here’s the black and white of it, next week Henley will have a surgery to place a gtube that will assist in maximizing her nutrition. We have resisted this for sometime but one thing we have learned to do on this journey is make the best decisions we can for Henley on a day to day basis. Her condition is changing constantly and what’s right for her today is different than what was right for her a month ago. To avoid being under anesthesia twice in one week we canceled her bone marrow biopsy that was scheduled for today and it will be done at the same time as the tube.
There are risks with this surgery due to her decreased blood counts on all three lines. Our church will activate a prayer chain when surgery begins Friday morning, the 29th, at 7:30am. We’d greatly appreciate your thoughts and prayers during that time as well. She will stay in the hospital for several days.
We are wishing you all a very Merry Christmas and are so grateful for your prayers and love as we have been going through this challenging time.
