Our tiny warrior continues to show her strength.
First, we've been fighting some sort of minor infection of her g-tube site. We did 10 days of antibiotics, but didn't see an improvement so then we did a culture Friday and have been waiting for results.
While waiting for results Henley started showing signs of getting sick on Sunday with RSV, which ended us in the ER at Sanford in Fargo. They confirmed she was positive for RSV and there was a lot of debate about hospitalizing her, but since she didn't actually need O2 at the time we decided to watch her carefully at "home." ("home" is my friend Tammy's house in Fargo).
Tuesday morning the results from the culture came back positive for some strange pathogen which has some antibiotic resistance, so we were scheduled to see an Pediatric Infectious Disease doctor today (Wednesday). A decision was made to start her on a new antibiotic but that doctor also though the site should be checked by a surgeon. Since the surgeon that did this surgery is in Minneapolis (and I wasn't a huge fan of his) we were able to schedule her to see a pediatric surgeon in Fargo tomorrow (Thursday) morning. As soon as I am done with that appointment I will head to Sioux Falls to see her Gastroenterologist and look at making some adjustments to her Creon medication. Creon is what helps her absorb her food and grow.
It's been such a whirlwind. I miss the twins. I miss Kyle and I miss home. There are some positives to being in Fargo though. Ranch Nanny (Katelynd) is here and has been a huge help. I was able to sneak out of the house for 30 mins and get my hair trimmed and even visited Target for the first time since August. What a treat! lol
Henley really is doing good today considering all the stuff she has going on. Her little body continues to exceed our expectations and I believe God is making her strong through this battle thanks to all the prayers coming from people like YOU! Thank you.
