Friday, July 21, 2017

Day 11 - Celebrating Small Victories

Day 11 - God is GREAT! Today's blood work results have us celebrating. Henley's hemoglobin and white blood cell counts have both improved! However, her ANC (absolute neutrophil count) continues to be zero. She will not need a blood transfusion today (as that would only work to improve her hemoglobin) and a decision has been made that she is stable enough to move to out patient treatment for now. A few things have to happen before we can be discharged though. First, they need to remove the current IV line she has. Second, we have to stay in the area - close to the hospital. We will have regular appointments and blood counts done until we have that official diagnosis. Third, we'll have a lot of rules surrounding Henley's exposure to other people and our friends and family will have to bear with us as Kyle and I fully exercise our "overly protective" parent skills. 
The plan right now is that we will go to Cousin Nathan's house. Kyle will go get the twins and bring them to see me for a couple days and then he will return home until we get the call to come in for a team meeting with Henley's team of doctors. 
To those who have signed up for the meal train we are SO THANKFUL for the meals and food we have received so far. It's allowed Kyle to stay here with Henley and I since he arrived in Minneapolis. Even though we are working towards discharge in the next couple days, I'm hoping we can still utilize the help that has been offered in terms of meals. I will be reaching out to those individuals who are on the calendar to see what we can arrange logistically. 
Henley loves each of her "Henley Helpers" so much. I tell her about all the people that have been praying for her, from those people back home, to friends in Spain, Sweden, Australia, Canada and Uruguay and so many states around the country. I'm trying to figure out how to make a pin map for her that marks each of those places. Thank you all so much!!