A plan was made that night to have a surgeon look at attempting to place a line the next morning.
July 13 Facebook post at 11:08pm
Today’s 
💕Henley 💕update – this is kind of a long one: The day started out with the Neonatologist trying to get an IV. They weren’t able to get an IV placed in her arms or legs, but did have success in her scalp. This was good because they were able to give her some pain medication for the biopsy procedure, which went good. We are waiting for those results (they had to go a lab in TN). Unfortunately, we lost that IV line shortly after the procedure. After that they were able to do several heal pokes and obtain enough blood for some bloodwork that revealed she did need a blood transfusion. Next they placed a feeding tube through her nose to help get more nutrition and fluid into her body with the hopes that would plump her veins up and give us success in another IV attempt. Those attempts, including a cutback procedure, failed. Our next step is meeting with the pediatric surgeon early tomorrow morning in hopes that he can place a PICC line.
💕Henley 💕update – this is kind of a long one: The day started out with the Neonatologist trying to get an IV. They weren’t able to get an IV placed in her arms or legs, but did have success in her scalp. This was good because they were able to give her some pain medication for the biopsy procedure, which went good. We are waiting for those results (they had to go a lab in TN). Unfortunately, we lost that IV line shortly after the procedure. After that they were able to do several heal pokes and obtain enough blood for some bloodwork that revealed she did need a blood transfusion. Next they placed a feeding tube through her nose to help get more nutrition and fluid into her body with the hopes that would plump her veins up and give us success in another IV attempt. Those attempts, including a cutback procedure, failed. Our next step is meeting with the pediatric surgeon early tomorrow morning in hopes that he can place a PICC line.
She has slept and cried a lot today, but this picture is a perfect example of our happy sweet girl who we are still get little sneak peaks every now and then.
We are so grateful for all the thoughts and prayers from each of you. Kyle and I have moments of feeling exhausted, but then remind ourselves that there are people like YOU that are helping us through this journey. We are praying that God guides us and gives us strength, courage and wisdom.
